Thursday, June 11, 2020

I feel my luck could change

In my humble opinion, one of the best songs of all time.  But you have to listen in a big way, either with headphones or good speakers or something.  It is fucking amazing.

I was lucky today.  Took care of two amazing patient families, and the most special 20 year-old renal patient.  Really neat kid.  His mom gave him his kidney.  His dad was like okay, how do I give you this award.  And I looked at him and was aghast--truly.  I told them that they made my job so easy, that it was honestly a pleasure to do it and I loved my job.  And yeah, I was lucky.  It was a fucking glorious day.

Lucky
Radiohead
I'm on a roll
I'm on a roll this time
I feel my luck could change
Kill me, Sarah
Kill me again with love
It's gonna be a glorious day
Pull me out of the aircrash
Pull me out of the lake
'Cause I'm your superhero
We are standing on the edge
The head of state has called for me by name
But I don't have time for him
It's gonna be a glorious day
I feel my luck could change
Pull me out of the aircrash
Pull me out of the lake
'Cause I'm your superhero
We are standing on the edge
We are standing on the edge

Wednesday, June 10, 2020

write it on your heart

Okay.  I am obviously losing it today.  So we entertain a bit of Ralph Waldo Emerson for the win:

"He said, 'Write it on your heart that every day is the best day in the year.  He is rich who owns the day, and no one owns the day who allows it to be invaded with fret and anxiety.  Finish every day and be done with it.  You have done what you could.  Some blunders and absurdities, no doubt crept in.  Forget them as soon as you can, tomorrow is a new day; begin it well and serenely, with too high a spirit to be cumbered with your old nonsense.  This new day is too dear, with its hopes and invitations, to waste a moment on the yesterdays.'"



Okay, this seems like a tall order.  But a girl can try.

I love you, God.  I am truly grateful for every breath, for every day.  For the glorious life that I live, for the job that I found myself doing after I tried and failed and tried again--I truly love what I do and know not many people get to do that in life.  For this I consider myself truly blessed, and exceptionally grateful.  I am humbled.  I love my family, I am challenged by my coworkers and friends and also love them immensely and feel loved in return.  My dog is pretty much the best thing ever.  And definitely gives the best cuddles.  Thank you, God.  I love you.  I will aim higher.  I will try to shine brighter.
I'm listening to this song that just came on, Something about you by--Odesza Remix by Hayden James.  And it's like, "What about a hit of your love?"  

And that's what it feels like.  Withdrawal.  I see my kids go through it all the time at work.  I feel like I'm withdrawing and fucking miserable for months.

Pleading.  Just a little bit.  C'mon.

I fucking love you.

Just a little.  

C'mon.  





To be naked, in your arms.  Warm and loved.  In love.  There is nothing better.  But I don't want anyone else.  No swapsies.  



What the legit fuck is wrong with me.

never have i ever been so sorry: fucked up again.

Cloyde had me watch this show, Never Have I Ever.  I said, I'm sorry.  I don't do fluff.  I'm into HBO dramas like The Wire or miniseries like Chernobyl or witty comedies like old-school Arrested Development.  I don't do what looks to be teen fluff.  But I said I'd give him one episode.  I watched the whole damn thing in two days and ended up sobbing.  I loved it.  Loved it.

I could relate in some ways.  I mean, my friends were those girls.  We were the so-called AP outcasts, that "UN"--the unfuckable, only I just so happened to be the tiniest, nerdiest white girl in my class.  I could relate to going to my best friend Priya's in my junior year of high school and having her mom prepare dinner knowing I was going to be in attendance (basically, dinner for me pre adding in a lot of additional spices for the rest of the family haha--she did this without my asking, I think she just knew having moved to the States from India so many years beforehand).  I would have done anything to have a cool boyfriend, but really not...because when push came to shove, I let another girl give the boy I liked a blow-job.  I wasn't ready and that was okay.  My girlfriends were really amazing, and made me strong and determined, and fuck.  I think I actually learned a decent amount of shit in high school.  So I did actually really enjoy that show.  I could relate to a lot of things even though it centered on a different culture and focused on a girl experiencing a big loss.  I dealt with my own losses in different ways I suppose.  And had a lot of fucking anger and a temper too.



Still do.  I lashed out at the person I still love.  Who in fact hates me.  Who only reads the texts I send when I send the ugliest, nastiest texts ever in life.  Yesterday was the one year anniversary of a favorite patient's death.  I still have a hard time thinking about it.  I still remember bathing her and putting on these really ugly pajama pants and being upset that it didn't feel right, that everything felt so wrong and what I would have done to see her smile one last time.  Mostly I always remember the good memories obviously, but this was that one day.  So I was angry.  And even a year ago I didn't really feel like my ex was there for me when she died, it was odd.  So I sent him this beautiful photo his mom posted to facebook.  With an amazing remembrance.  And of course he didn't read it.  And then crazy ramblings that became more and more angry and pissed because I'm so hurt that he hasn't ever talked to me since September really and I basically just broke up with myself since he said he needed a break and a week later I said it doesn't feel like a break and he said no after I called many times blah blah blah and I basically dumped me.  Cool.  Anyway, I drank last night and was an asshole.  A major asshole.  No excuse for bad behavior.  Whenever I hurt, I do not allow myself to be sensitive and hurt.  I lash out and get so. very. angry.  I am mean.  I am like a wounded lion.  A wolverine.  A gray wolf.  I am ill-tempered and cruel.  I will say the meanest fucking thing and I do not understand why because I want to howl at the moon, I want to cry, I want to bleed.  I do not allow it of myself.  

I do not know what's wrong with myself.

I asked my psychiatrist this week if it's normal to be so sad.  She nonchalantly asked if I wanted to be on medication.  I said the last time I was on it was years ago and I was afraid because I had not felt anything.  And is it better to be heartbroken and desolate or unfeeling altogether.  She looked at me and said I have a hard time believing you were ever unfeeling you are one of the most feeling people I've ever met.  What the fuck kind of response is that.  If I tell you that is the very thing that petrifies me then believe it.

I love you, Daniel.  I am so sorry.  But you should be too for all the fucking bullshit you have put me through.  And why can we both not say sorry and actually talk and deal with this.  Do you not have feelings the way I do?

Monday, June 8, 2020

I struggle so much with keeping children alive who have no say in the matter who have no parents at the bedside to watch their suffering.  Who literally say that it is too painful to see their child the way they are, and yes, they know they have a terminal illness, but we must (the hospital) give them a trach and G tube so that the suffering (the child's) is further prolonged.  All I can do is be as gentle as possible, provide as much dignity and compassion as I can, be as liberal with pain medications as feasible, and apologize all shift long to a child I pray finds heaven soon.  The things these children endure.  If you could see these wounds, these sores, these physical things.  It is like oh my good Lord, please take them home.  Please.  Please free them.  Because if anyone deserves heaven it is these little angels.  It breaks my heart.  And if I am being forced to watch, it really angers me that the parents aren't by his or her side along the way.  I will always hold a hand.  I will always wipe a face.  I will always tell them I love them.  But it isn't the love of a parent, the hand of a parent.  And that is the biggest indecency that I really struggle with.  I am so truly sorry for these parents--I cannot fathom it.  But goddamn it.  Be there if you are taking the choice away from the child (who in some cases is an 18, 19, 2o year old with that parent making medical decisions on his or her behalf).  

I love all my babies in heaven.  I only wish there weren't so very many of them.  They are more courageous, stronger, and more loving than I can ever hope to be.  

thunder-heart

This is beautiful.  I learned some new words, and I had to read and re-read it to appreciate it.  It's really something:




Oh Wonder

Traci Brimhall

It's the garden spider who eats her mistakesat the end of day so she can billow in the lungof night, dangling from an insecure branchor caught on the coral spur of a dove's foot,and sleep, her spinnerets trailing radials likeungathered hair. It's a million-pound cumulus.It's the troposphere, holding it, miraculous. It'sa mammatus rolling her weight through duskwaiting to unhook and shake free the hail.Sometimes it's so ordinary it escapes your notice—pothos reaching for windows, ease of an avocadoslipping its skin. A porcelain boy with lampblackeyes told me most mammals have the same averagenumber of heartbeats in a lifetime. It is the mouseengine that hums too hot to last. It is the blue whale'sslow electricity—six pumps per minute is the wayto live centuries. I think it's also the hummingbirdI saw in a video, lifted off a cement floor by firefightersand fed sugar water until she was again a tempest.It wasn't when my mother lay on the garage floorand my brother lifted her while I tried to shout louderthan her sobs. But it was her heart, a washable ink.It was her dark's genius, how it moaned slow enoughto outlive her. It is the orca who pushes her dead calfa thousand miles before she drops it or it falls apart.And it is also when she plays with her pod the dayafter. It is the night my son tugs at his pajamacollar and cries: The sad is so big I can't get it all out,and I behold him, astonished, his sadness as cleanand abundant as spring. His thunder-heart, a marvelI refuse to invade with empathy. And outside, cloudsgroan like gods, a garden spider consumes her home.It's knowing she can weave it tomorrow betweencitrus leaves and earth. It's her chamberless heartcleaving the length of her body. It is lifting my soninto my lap to witness the birth of his grieving.

Wednesday, June 3, 2020

I am utterly heartbroken with all of it. The whole world.